One of our goals this year is trying not to be so hard on our kids. We want to be aware of their potential of being able to do things on their own and add more positive reinforcement into our family life. We often expect too much from our son Daniel. He’s 2 years old, […]
Tag: Daniel
One of the things I want to work on this year is our busyness as a family. This includes therapy sessions, doctor appointments, and meetings with various service coordinators. After everything with the kids, there’s not a lot of time to be with our family. It’s easy to get sucked into all the therapy that […]
This year was big for my family. There were exciting times when important milestones were met such as walking and talking. Our family grew by one more when our daughter Grace was born in February. There were also hard times like when half our family was diagnosed with a rare genetic mutation. Whether it was […]
Having three kids with special needs means spending an incredible amount of time in doctor’s offices. Whether it’s a just a regular check-up or seeing a new specialty doctor, the appointments are part our weekly routine. My son Nicholas is very medically complex. At first he just had follow-up visits after being in the NICU […]
I would like to honor my mom and mother-in-law this Thanksgiving. I’m thankful for everything they’ve done for my family in the past three years. I have three kids with special needs and they both have been there since the beginning. They’re our biggest support system. My first son Nicholas was recently diagnosed with Autism. […]
Nothing is harder for me as a mother than to watch my kids suffer through surgeries, procedures, and hospital visit after hospital visit. It’s even more hard when I can’t do anything about their pain or help them in any way. All three of my kids have had surgeries, but nothing compares to my son […]
I talk a lot about my experience and difficulties when caring for my son Daniel’s colostomy bag here. Daniel was born with Imperforate Anus and had a colostomy bag for 15 months. He has since had a reversal and stools regularly now. There are many things I wish I had known and found out the […]
The first few weeks after coming home from the NICU were rough with both boys. Their medical equipment and needs were overwhelming. And I was only taught a few times how to use it before they sent us on our way. Something I recommend to anyone coming home with medical supplies from the hospital is […]
Another baby in the Neonatal Intensive Care Unit. This time for different reasons. My son Daniel’s stay was a little different than my son Nicholas’s time in the NICU and more dramatic. We knew Daniel was going to be born with some complications. At 16 weeks in the womb, through ultrasound we saw that his […]