Last year was hard. A year ago around this time, we were struggling with Daniel and his enemas. They weren’t working and he would have big accidents in the middle of the night. Daniel was born with VACTERL, a medical condition that affects multiple body parts. Daniel doesn’t have feeling in his bottom area and […]
Tag: Daniel
After a year of isolation in 2020, this year was filled with so many adventures for our family. We spent a lot of time outside especially at the splash pad. It was the first year where I felt comfortable taking the kids places with a little bit of help, and sometimes by myself. 2021 saw […]
Trust. Firm belief in the reliability, truth, ability, or strength of someone or something. I’ve never had to trust a group of people as much as I did when my babies were staying in the Neonatal Intensive Care Unit (NICU). All three of my kids were in the NICU after birth for different reasons and […]
This summer was completely different from the last one. Because of the pandemic, we were very limited to what we could do last summer. It was hard because it was potentially going to be the first summer where I felt comfortable doing things with the kids. Of course, we couldn’t do anything last year. That’s […]
My Fighter Daniel, You truly are the strongest boy I know. You just turned 5 years old last week, but the amount of surgeries, challenges, and struggles you’ve gone through makes you braver than most people. You were born with a syndrome that affects a lot of your body parts, hence all the procedures you’ve […]
Our first week of summer is almost over and it’s already looking different from last year. We’re looking forward to being able to more things this year that we couldn’t do last year. A year ago it was our first summer where we could have actually gone out more as a family, but since COVID […]
There’s a saying that goes, “when you’ve met one person with autism, then you’ve met one person with autism.” Meaning no two autistic people are alike, everyone has different challenges. That couldn’t be anymore true for my family. All three of kids have autism, but they are all so completely different from each other. Although […]
One year ago my kids came home from school for Spring Break and never went back. The world shut down and we had to stay inside for three months. Our lives turned a complete 180. Our family thrives on routine, so when that was taken away it got hard. We had to do therapy over […]
My son Daniel has been challenging since the beginning. He is strong-willed with a big personality and has even bigger feelings. He cried all the time as a baby. I attributed his big emotions back then to him being in pain. He had a cast on his leg the first few months of his life […]