My son Daniel has been challenging since the beginning. He is strong-willed with a big personality and has even bigger feelings. He cried all the time as a baby. I attributed his big emotions back then to him being in pain. He had a cast on his leg the first few months of his life […]
Tag: diagnosis
2020 was certainly a different and hard year. There was a pandemic that forced us to stay home, have therapy over telehealth, and school came to a complete halt. It was definitely a hard transition. However, there were many positives that came out of it. Things we rediscovered about ourselves and our family unit. We […]
When I found out my third baby was going to be a girl, I was really excited. I had two boys already and was curious how adding a little girl into the mix was going to be. I thought, and hoped, maybe my girl won’t have as many challenges that my boys had. I had […]
It’s been one year since Nicholas was diagnosed with Autism and a rare genetic mutation called ZNF462. Autism was something we expected, the genetic mutation was not. Both diagnoses left me scared with different emotions, however I also felt a sense of relief. We had answers and could now get him the help he needed. […]
One of the most difficult things about having a child with special needs is knowing what to say when people say hurtful comments. I used to prepare myself with the perfect comebacks if such a situation would arise. However, when that time came, I was speechless. One of the most unthoughtful comments that was said […]
There have only been a handful of times where I’ve been completely shocked during my kid’s doctor appointments. It’s one of those eye-opening appointments where everything I thought about a certain diagnosis totally changes. A little over two years ago, my son Nicholas saw a neurologist for the first time. Nicholas was born five weeks […]
This year was big for my family. There were exciting times when important milestones were met such as walking and talking. Our family grew by one more when our daughter Grace was born in February. There were also hard times like when half our family was diagnosed with a rare genetic mutation. Whether it was […]
This is where our journey begins. I had never really heard or thought about the Neonatal Intensive Care Unit (NICU) until we experienced it firsthand. My first son Nicholas was born at 35 weeks after an emergency C-section. He wasn’t moving around anymore, so after a few hours of being on the fetal monitor, we […]
About a year before my son Nicholas was diagnosed with Autism, I started following some special needs blogs and autism blogs online. He had developmental delay and sensory processing disorder, so I had a feeling an autism diagnosis was coming. I started reading about people’s experiences for support, but also to educate myself. I think it […]