This summer flew by. We didn’t do a ton of things, but we did get out more than we have in the past. That was one of my goals; to be able to take my kids places. I wanted to make memories and I made sure I had the resources to accomplish that. We invested […]
Tag: Daniel
You’ve been through so much in your first three years of life. And no I’m not just talking about the eight surgeries you had before you were two years old. Or the daily therapy sessions and weekly doctor appointments. I’m talking about your relationship with your two siblings. Your brother has Autism and is sensitive […]
You are my rock. You are the reason I’m able to manage all we have endured together. You’ve never left my side no matter what the experience. We are one month shy of our 5-year wedding anniversary, yet we’ve been through so much in just our first few years of marriage. A conversion of faith […]
This past winter was hard. Everything was getting to me and it hit me how much we’ve been through. I held my cool for a long time, but I think I finally processed the last 4 years. It’s been draining and exhausting. The kids had the most therapy we’ve experienced. Sometimes I feel so controlled […]
One of the most difficult things about having a child with special needs is knowing what to say when people say hurtful comments. I used to prepare myself with the perfect comebacks if such a situation would arise. However, when that time came, I was speechless. One of the most unthoughtful comments that was said […]
When I was eight months old, I had open heart surgery to repair my pulmonary valve that was only 2mm wide open. As a result, sometimes I have shortness of breath. I could possibly have another surgery in the future to replace the valve. Other than that I have no other medical conditions. Thirty years […]
Daniel has been in therapy since he was 3 months old. He was born with multiple physical disabilities that led to a 4-week stay in the NICU. Once he came home, we immediately set him up for services. He started the Early Invention (EI) program with the hope that it would help him catch up […]
When I was 16 weeks into my second pregnancy, I found out my baby was going to be born with clubfoot. Clubfoot is when one or both feet are turned inward or outward. The affected foot is usually smaller than the other. Treatment is usually successful through a combination of casting, stretching, and taping. This […]
Sometimes it’s really hard for our family to go places outside of the home. Whether it’s going to church, a park, a holiday get-together, or some other event, it’s difficult for my husband Steve and I to juggle our three kids 3 years old and under. We’ve probably only been to a restaurant as a […]
Something I want to start doing this year and really need to do for my own health is using respite services to take a break and do something for myself. Respite allows caregivers time away from their duties while someone else comes in to care for your loved one. Breaks are important for any parent […]