The world has shut down. We’re under stay-at-home orders. Because of a new virus that can be fatal, we’re forced to stay home until it’s contained. We have to stand six feet away from other people if we go anywhere. We have to homeschool our children because schools are closed until further notice. Doctor appointments […]
My son Daniel was born with a disorder that affects multiple parts of his body called VACTERL association (V – Vertebrae, A – Anus, C – Cardiac, T – Trachea, E – Esophogous, R – Renal, L – Limb). Out of the seven conditions, Daniel had complications with five of them including: tethered cord, imperforate […]
We have a lot of goals set for our family this year, but here are the biggest ones we want to accomplish in the year 2020. Nicholas wears glasses and headphones — Nicholas wears his glasses at school, during therapy, for his grandparents, and for anyone but my husband and me. I really want to […]
The year 2019 was a big year for our family. Whether it was each one of us growing independantly or improving together as a family, it was certainly a year of growth. We also learned to understand our limits in different situations and when it was time to step back and take a break. Regardless […]
The holidays are upon us and while it’s an exciting time, it can also be stressful and overstimulating for kids with special needs. Loud noises and big crowds don’t bode well for three little ones who are oversensitive to a lot of things. Understanding our family’s limits have helped us the past couple of years […]
We’ve been doing therapy since my son Nicholas was 6 months old. He was behind from the very beginning, and wasn’t hitting his milestones at all. He was oversensitive to everything, would arch his back a lot, and needed help with most things. It was recommended by his pediatrician that he start seeing an occupational […]
Doctor appointments used to be exhausting with my son Nicholas. He has autism, is very sensitive to touch, and doesn’t like to be messed with, especially in the doctor’s office. There were meltdowns from beginning to end. He did not like getting his height and weight checked, getting vitals, or any touching during the examination […]
Autism can be hard to understand especially for a toddler. All my son wants is just a relationship with his older brother, who up until a few months ago wanted nothing to do with him. Two boys with completely different personalities: Nicholas who is laid back, keeps to himself, quiet (most of the time), and […]
It was a year ago this month when my son Nicholas licked ice cream off a spoon. It was the first time he’d eaten anything by mouht in two years. And he actually liked it and wanted more. He has always struggled with anything near his mouth. For a few months following that he showed […]
On Neonatal Nurses Appreciation Day, I just want to say thank you. Thank you for working 12 hours straight. For working in the middle of the night when the rest of us are sleeping. For getting peed on, pooped on, thrown up on, drooled on and not complaining about it. You guys are angels and […]