My son Daniel was born with a disorder that affects multiple parts of his body called VACTERL association (V – Vertebrae, A – Anus, C – Cardiac, T – Trachea, E – Esophogous, R – Renal, L – Limb). Out of the seven conditions, Daniel had complications with five of them including: tethered cord, imperforate […]
Tag: Imperforate Anus
I talk a lot about my experience and difficulties when caring for my son Daniel’s colostomy bag here. Daniel was born with Imperforate Anus and had a colostomy bag for 15 months. He has since had a reversal and stools regularly now. There are many things I wish I had known and found out the […]
Another baby in the Neonatal Intensive Care Unit. This time for different reasons. My son Daniel’s stay was a little different than my son Nicholas’s time in the NICU and more dramatic. We knew Daniel was going to be born with some complications. At 16 weeks in the womb, through ultrasound we saw that his […]