Last year was hard. A year ago around this time, we were struggling with Daniel and his enemas. They weren’t working and he would have big accidents in the middle of the night. Daniel was born with VACTERL, a medical condition that affects multiple body parts. Daniel doesn’t have feeling in his bottom area and […]
Category: Daniel
My Fighter Daniel, You truly are the strongest boy I know. You just turned 5 years old last week, but the amount of surgeries, challenges, and struggles you’ve gone through makes you braver than most people. You were born with a syndrome that affects a lot of your body parts, hence all the procedures you’ve […]
My son Daniel was born with a disorder that affects multiple parts of his body called VACTERL association (V – Vertebrae, A – Anus, C – Cardiac, T – Trachea, E – Esophogous, R – Renal, L – Limb). Out of the seven conditions, Daniel had complications with five of them including: tethered cord, imperforate […]
You’ve been through so much in your first three years of life. And no I’m not just talking about the eight surgeries you had before you were two years old. Or the daily therapy sessions and weekly doctor appointments. I’m talking about your relationship with your two siblings. Your brother has Autism and is sensitive […]
Nothing is harder for me as a mother than to watch my kids suffer through surgeries, procedures, and hospital visit after hospital visit. It’s even more hard when I can’t do anything about their pain or help them in any way. All three of my kids have had surgeries, but nothing compares to my son […]