Clubfoot

Clubfoot doesn’t slow down my son

When I was 16 weeks into my second pregnancy, I found out my baby was going to be born with clubfoot. Clubfoot is when one or both feet are turned inward or outward. The affected foot is usually smaller than the other. Treatment is usually successful through a combination of casting, stretching, and taping. This […]

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Autism

Positive experiences with IEP meetings

This morning we had Nicholas’s annual IEP meeting at his school. An IEP is an Individualized Education Plan, a document for students in special education that’s designed to meet their educational needs. It’s created by a team (parents, teachers, therapists, etc.) and is reviewed yearly to talk about strengths, weaknesses, and goals. Nicholas has had […]

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Resolutions

Resolutions: Knowing our limits

Sometimes it’s really hard for our family to go places outside of the home. Whether it’s going to church, a park, a holiday get-together, or some other event, it’s difficult for my husband Steve and I to juggle our three kids 3 years old and under. We’ve probably only been to a restaurant as a […]

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Resolutions

Resolutions: Using respite the right way

Something I want to start doing this year and really need to do for my own health is using respite services to take a break and do something for myself. Respite allows caregivers time away from their duties while someone else comes in to care for your loved one. Breaks are important for any parent […]

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Resolutions

Resolutions: It’s OK to say ‘no’

One of the things I want to work on this year is our busyness as a family. This includes therapy sessions, doctor appointments, and meetings with various service coordinators. After everything with the kids, there’s not a lot of time to be with our family. It’s easy to get sucked into all the therapy that […]

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2018

Top moments in 2018

This year was big for my family. There were exciting times when important milestones were met such as walking and talking. Our family grew by one more when our daughter Grace was born in February. There were also hard times like when half our family was diagnosed with a rare genetic mutation. Whether it was […]

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Appointments

Managing the never-ending doctor appointments

Having three kids with special needs means spending an incredible amount of time in doctor’s offices. Whether it’s a just a regular check-up or seeing a new specialty doctor, the appointments are part our weekly routine.  My son Nicholas is very medically complex. At first he just had follow-up visits after being in the NICU […]

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